The purpose of the blog is to help others live healthier, happier lives by sharing what has helped/ not helped in Carla's 20 years of having lupus (SLE). Humor has been one of the things that has consistently been helpful, and is incorporated fairly regularly into the posts. Plaquenil eye chart Hydroxychloroquine monitoring bloods Chloroquin quinine Does anyone take plaquenil and LDN? I recently flared after taking 1 plaquenil a week for a few years. Now taking 2 a day again, 3 weeks in and not feeling better yet. Extreme cognitive dysfunction and I can't work. My dr prescribed the low dose naltrexone to me but I'm afraid to take it. By Julie R October 4, 2016 at pm. Is anyone else taking low dose naltrexone for their rheumatoid disease? I’ll keep this short because I’ve tried to post on this topic before and my post didn’t “take”, wasn’t accepted, or whatever. I haven't heard of anyone getting worse while taking Low Dose Naltrexone. The most often reported side effects are sleep disturbances and vivid dreams, which most often go away after a short time. However, I understand that Plaquenil does have some devastating "side effects," including possible blindness! Patients also frequently experience symptoms of scalp itch, pain, and burning. Lichen planopilaris (LPP) is a variant of lichen planus that affects the scalp causing scarring hair loss. Low dose naltrexone and plaquenil Lupus Patient's Amazing Recovery with LDN LDNscience, Low-Dose Naltrexone Running out of plaquenilChloroquine acidityThis chloroquine remove cyanobacteria from a fish tank To date, there are no long-term remittive nor curative therapies available. Low-dose naltrexone has anti-inflammatory properties and has recently been described in the context of treating autoimmune conditions. This retrospective medical record review describes four LPP patients treated with low-dose 3 milligrams per day naltrexone. Research - Low Dose Naltrexone. Plaquenil & Low Dose Naltrexone -. Low dose Naltrexone - Complementary Therapies - Life With Lupus. Olive, I didn’t know much about low-dose naltrexone, so I looked it up. The wikipedia article isn’t a bad source for understanding this medication. I can see why tj was advising caution, as the article states that there have been many pseudoscientific claims about low-dose naltrexone without proper evidence from clinical trials. While Naltrexone is primarily for opioid addiction, a doctor in New York, Dr. Bernard Bihari, discovered that when it was taken at a much lower dose, LDM exhibited beneficial results for patients with autoimmunity, cancer, and HIV or AIDS. Hence the name Low-dose Naltrexone LDN. There is a growing interest in low dose naltrexone LDN. Doses range from 3 to 4.5 mg instead of the standard 50 mg dose. At this low dose, there are reports that the drug can help treat a range of health problems with minimal side effects Clinical Rheumatology, online, Feb. 15, 2014. These are off-label uses not approved by the FDA.